So, as promised my most recent labs are back. I did have them before I saw the kidney doctor, and primary care doctor, but I wanted to wait and get feedback from them too.
I am basically stable, no ups, no downs. That is good. However, my kidney doctor kind of annoyed me because he said my blood Creatinine levels will never improve, they can only get worse. Now, I have said before how much Negative Nancy’s annoy me, especially when I have proof it is not true. In January 2018, 1 year after I was diagnosed my Creatinine was 1.13, normal, is 1.10. That means my kidneys were able to clear most of the Creatinine from my blood. So, I know he is wrong. I just have to figure out what I am doing different now. One thing I can think of, is Summer of 2018 my labs were almost as identical to now. Since it is so hot here in Florida, I may be sweating out more fluids than I am taking in, and I had my blood drawn after working, and I do not get to drink as much at work. Hence I may have been dehydrated, which can make Creatinine a smidge higher. Creatinine is made by muscle use, so increased muscle use can increase Creatinine, not a lot, but a little, and when you have CKD a little is a lot. So, the fact that I am lifting weights can also explain some of that. That does not mean I will stop lifting light weights, but I may stop a week before my next lab draw, in 6 months, to see if there is a difference. I have to be more aware of drinking enough while at work, as well. Why the big fuss, on my part, if I am basically stable? Because, when my Creatinine level was 1.13, my kidney functions was 88%, now with my Creatinine at 1.30, my kidney function is 76%. So, you can see why I would rather have it be as low as it can. To me, and maybe my kidney doctor does not see it this way, If I can get 1 1/2 kidneys to function at close to 100% that is obviously what I would want. He did finally explain to me, it only took 2 years, how you figure out how much kidney function you actually have. If you are like me, and your GFR is 50, then you may assume you have 50% kidney function. This apparently is incorrect. You take 100, and divide it by your blood Creatinine level. So, 100 divided by 1.30 is actually closer to 77%. The GFR is a filtration rate, estimate. Everything else on my labs was completely normal. I had zero protein in my urine, which is awesome. So, a couple things I can take away from this visit. 1- I can probably safely increase my protein intake just a little bit, to accommodate the weight training. I will increase to 65mg per day, and I probably will not venture any higher than that. If I start noticing signs of protein in my urine, I will cut back down. He did not order a Vit D level, or an Intact PTH, which also annoyed me, because I eat very little Calcium, and I need to make sure my bones are healthy.
That brings me to my primary care doctor, who did order those for me, but she did say the kidney doctor, if I was going to continue to see him for the kidney, needs to order those things in the future. I know he did not order them for the next round in 6 months either. So, I will have to call ahead to see if he wants to add them. Annoying! I have to see her again, in November, for Cholesterol and all that stuff. Cardiac Disease does run in my family, as does Diabetes, and while I do not have either of those, they need to be monitored. The only other issue, is my BP. I am exercising 5-6 days a week, and have lost some weight, so the fact that my BP is a little higher than 6 months ago, is a little concerning. The kidneys regulate BP, and high blood pressure can decrease kidney function. So, now I am taking BP, daily, rotating arms, and logging it. For people with kidney disease, a normal BP is 135/85.
I am already tweaking the monthly small group sessions. I will post about that probably on Saturday. For now, though, you can still sign up for the Better Sleep group sessions, starting Sept 4th and running all month. You can read about that here.
If you would like to learn more about reading, and understanding your labs, and then advocating for yourself, use the contact form below to message me about a free meet and greet.
You can see all of my available plans, here. Don’t forget I am almost done with the Guided Imagery class, and will be able to offer Guided Imagery plans. I have moved on to the Herbalism class. So much to learn there. Wow!