If you follow this blog then you know I have CKD, and you also know that there is no apparent cause for my CKD.  I do not have Hypertension, Diabetes or any of the other major risk factors.  I had signed up for an AAKP seminar, today, on CKD and Covid19.  Unfortunately, the webinar was not working correctly and they had to reschedule it.  But, I went to the AAKP website to see what other tidbits they have to offer.  I saw something about Fabry Disease and I clicked on it.  Interestingly enough,  it seems I may actually have Fabry Disease.  Most notably one of the symptoms that caught my attention was the inability to sweat and heat intolerance.  Plus, protein in the urine starting at a young age.  I have had foamy urine since at least the 90’s.  I also sweat very little and have huge issues with heat intolerance.  Even more important to me is my daughter appears to also not sweat and also has heat intolerance.  I see my Nephrologist at the end of April.  I had to change my appt due to him being out of town, but believe you me I will be asking him about this, and if he disagrees with me, I will contact the UCLA in the video below or this Fabry Disease website to be tested.  The gentleman in the video below said if someone has CKD with no known cause, Fabry Disease should be considered.

I hope everyone is practicing social distancing and doing well.  It is a very trying time right now.